Hi Anita,
Yes, it’s definitely the most exhausting. I think at this point there is so much frustration that she’s not able to receive the treatment she needs (through absolutely no fault of hers or anyone’s — maybe having no one to blame makes it difficult too?). We keep getting our hopes up that she’ll finally get what she needs, and then it doesn’t happen. It’s a lot of ups and downs, and the downs go down pretty far.
I definitely don’t feel able to talk to my mom about my distress and frustrations…she needs to focus on getting better and dealing with her own emotions and everything that’s going on with her…she doesn’t need me essentially pouting and saying I can’t deal, especially when there’s not really anything that can be done about it, you know?