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Posts tagged with “Trisomy 18”

How I Cherished Every Beautiful Moment of My Daughter’s Short Life

In the spring of 2012, I heard this word, “rest.” I realized how horrible I was at it. I wasn’t even sure what it was. Was it extra sleep? Was it not working on Sundays? Shortly after I heard this word, my life began changing. For one reason or another, one by one, the things with which I occupied myself were stripped away until I found myself with nothing left to hold.

A year later I was in a panic, wondering how we were going to make ends meet. Everything in me said to do what I had always done: …