September 17, 2020 at 11:29 am #366863
No, not me, doctors. Several specialist in the field. They doctors who were trying to treat my sister didn’t follow procedure. They suspected encephalisis at the beginning but never moved forward on that. Then they tried several different types of medicin, which the specialist said is what they do in a case like that. But if the patient dosen’t improve within 6 months you have to stop using it, in her case they opt the dosage. They went through a list of the different types of medical malpractise that happened, and weren’t able to tell us why they didn’t follow the procedure for the symptoms she had. They also told us that they had never seen a case quite like this. People who suffer from encephalisis for a long time without treatment are gonna become braindamaged. Because the inflammation damages the brain tissue. I depends on where the inflammation is located and how long its there.September 17, 2020 at 11:56 am #366866
Dear Katrine Nielsen:
It’s been very difficult for me to understand, but I think I finally understand better: the doctors did not follow established procedures. In the U.S that’s a basis to seek financial compensation in a court of law. I understand that in Denmark, for one, there is a way to seek compensation not through court, and this may be what you and your family are doing. I am guessing that it will need to be shown through evidence that your sister indeed suffered brain damaged that could have been prevented if procedures were followed. She is smart, you say, and there is no visible brain damage looking at her, but her behavior (such as screaming, pulling her hair, rolling on the floor) may be evidence of such.
You mentioned in one of your recent posts that you never had a boyfriend, am I remembering correctly?
anitaSeptember 17, 2020 at 12:27 pm #366867
Yes, I know it’s a very difficult case, so many unfortunat things have happened. We had five years to seek compensation but that was changed to four without us knowing. We get a discount for her to receive other types of treatment, that she need. The biggest issue is her being in a pain all the time. Extreme headaches and her vision is affected by it. So noises and light causes a lot of pain.
Yes, thats correct. I deal with social anxiety and I have trust issues, I not saying all men are players but I never trust that someone could be interessted in a relationship with me. And I’m bad a going out and meeting people.September 17, 2020 at 1:40 pm #366881
Dear Katrine Nielsen:
I read in the Mayo clinic. org website, that Encephalitis, inflammation of the brain, is caused most often by viral infections, especially in children. “In general, young children and older adults are at greater risk of most types of viral encephalitis”.
“When a cause (for Encephalitis) is known, the most common is viral infection”. Other causes are bacterial and fungal infections, and sometimes, a person gets infected by a pathogen, but instead of the immune system attacking only the pathogens, it also attacks the person’s own cells, in this case- the overzealous immune system attacks its own, healthy brain cells.
Encephalitis “often causes only mild flu-like signs and symptoms, such as a fever or headache, or not symptoms at all”, but in severe cases, “Inflammation can injure the brain, possibly resulting in a coma or death. Other complications- varying greatly in severity- may persist for months or be permanent. These complications can include: persistent fatigue.. personality changes, memory problems.. hearing or vision defects..”.
It is an amazing misfortune- your sister’s misfortune, but also your mother’s and your own. Just because your pain is not the same as your sister’s, it is still a significant. I suffer from a significant degree of Tourette Syndrome (TS), repeating tics, every moment of my waking hours. It is very, very uncomfortable much of the time. I used to think: how lucky are all the people who do not suffer from these tics.. only later did I realize that there are all kinds of pain, all kinds of discomforts, and that just because another person does not suffer from TS., does not mean their lives are free from pain and trouble.
You need not suffer any more than you have to. You deserve to pursue a better life for yourself even though your sister is suffering. So many people are suffering, way too many. Have empathy for yourself, make the best of your life as it is, because you owe it to yourself.
A best life for you will not be a fantastic happily-ever-after story, but it can be better than what it is. I will stop here, but we can continue to communicate for as long as you want to, if you do, in the days and months ahead.
anitaSeptember 18, 2020 at 12:33 am #366919
Thank you for listening and for opening up about yourself. I’m feeling better getting this off my chest and I’m starting be get more energy back.September 18, 2020 at 7:05 am #366928
Dear Katrine Nielsen:
You are welcome. I am here to listen to you anytime you want to talk.. to type, that is.