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  • #443162
    DREW
    Participant

    I recognize none of you may be experts in appropriate fields, but I hope one of you will have met this issue and overcome it somehow.
    I currently don’t have full of my own actions, in two senses:

    1. A few years ago I was temporarily prescribed a medicine by a specialist, and while on it a problem began which persists even now – I continually find myself vocalizing my own thoughts (unintentionally), mostly noticing sometime through doing so, but also after I’ve finished saying them aloud!
    I know this may sound unbelievable, but believe me – it’s possible, and it happens!
    Think of it: how often have you started scratching an itch BEFORE you’re aware that you’re doing so?
    And it doesn’t just happen in my house where no-one sees it, it’s happened while I’m out walking!
    Needless to say, it has to stop!
    I don’t want folk hearing my innermost thoughts: what if I got a job and a colleague told me something in confidence, then another colleague heard me unknowingly muttering it aloud?
    And I don’t want folk thinking I’m crazy!
    My GPs have no answer, and the specialist said he’d never heard of such a thing (and I’ve been off that pill a few years now).

    2. This one is lifelong: something will happen to me, and I can’t / don’t respond in the way I want to. E.g. a person will ask me something, say something to me, or DO something to me, and instead of responding in a way I’d like, I just react, often in a way I’d prefer not to. I’ll either have done it before I know it, or find myself in the process of doing it and feel it’s too late to stop. Either way, I always regret it – especially if the other person gives me a hard time over it.
    Or it may not even be a person: an event may occur that upsets me, and I’ll hit something in frustration – which I don’t want to do, as above all I don’t want to be injured, nor do I want to damage things.
    Once, a rather impatient optician gave me instructions during an exam, and as I wasn’t getting it right – and was taking too long for her – she took my hand and placed it where it was supposed to go!
    Luckily for her, I was in a good mood, and was so amazed by what happened, that I just laughed!
    But I could have snatched my hand free, rebuked her for doing taking a liberty, and – strictly speaking – what she did could constitute an assault. Certainly she’d no right to do it.
    And later on when I recalled it, I felt very angry at her, and very bad about myself being unable to handle it better.
    What I WANT to do in all such situations is be fully aware of what’s going on, be fully aware of what I’m doing, and RESPOND in a deliberate, controlled, assertive way; and ideally be calm too.
    Have any of you managed this?
    If so, how?
    If not – PLEASE DON’T RESPOND!
    I don’t want any well-meaning people who THINK they not what will or may help; if you haven’t actually overcome this yourself, please don’t reply!
    I know from much experience of that, that it’s useless, and will only add to my frustration!
    Please resist any such temptation!
    Oh, and mindfulness HASN’T helped.
    Thanks for reading this.

    #443173
    Alessa
    Participant

    Hi Drew

    I’m sorry to hear that a medication caused you to speak your thoughts out loud. That is upsetting when it didn’t used to happen before. Does it happen often?

    If you don’t mind me asking what was the name of the medication that caused the issue?

    I’ve quite often experienced doctors not learning about the side effects of medications. It is entirely possible that it could be a rare side effect depending on the kind of medication.

    They may also not be concerned because thinking out loud is a rather common behaviour. Certainly, it isn’t something that means anyone is crazy. I’m a thinker out loud too. I don’t really mind it though. When it came to a job that involved confidential information and working openly in the public I just practiced muttering to myself without the noise to avoid any issues. Humming a tune is also something I did instead. The internet recommends chewing gum.

    It sounds like you handled the situation with the optician well, you were just a bit surprised. It is common for people to not respond in a usual way when they are surprised. I don’t think it’s necessarily a problem that they tried to help you, but they could have asked if it was okay first.

    I can understand why you would want to manage your emotional responses when it comes to hitting things though. The easiest way would probably to pay attention to your mood and disengage from whatever situation is upsetting or making you angry before it gets to the point where you start to hit things.

    Do you have any difficulties with sleep at all?

    One of the most helpful things for impulse control is to sleep well. It might sound silly but research shows that being tired is just like being drunk, which also negatively affects impulse control.

    The times when I struggle most with impulse control are when I haven’t been sleeping well.

    Of course, managing stress is important too. People often act out of character when they’re stressed, as opposed to when they are feeling calm and relaxed.

    I found the supplement L-theanine helpful for impulse control. It is an extract of green tea and promotes a calm focus (I was also having trouble concentrating at the time). Anti-depressants can also be helpful too. I understand if you are feeling unsure about taking medication after that experience you had though.

    Beta blockers have also helped me to manage my emotions when things are really tough. It’s not a mental health drug. Just a blood pressure medicine.

    When it comes to situations that you are aware of in advance, considering how you would like to act before you are in that situation could be helpful. Or if you are placed in an awkward situation and need some time to consider how to respond, excusing yourself and going to the bathroom so you can collect yourself can be helpful.

    Splashing cold water on my face, massaging my neck and back of the head, yawning repeatedly are all things that science shows calm down the nervous system.

    I wish you good luck with figuring these things out!

    #443182
    Jana 🪷
    Participant

    Hello Drew,

    Mindfulness DOES HELP with self-control.

    How long have you practiced mindfulness? Have you had any troubles while trying to be mindful in your everyday life?

    You need to go deeper into your problems. The results won’t come in a few days. Changes take time. If you feel like sharing more, we are here to help. But bear in mind that you must be open to discussion and advice.

    ☀️ 🪷

    #443191
    DREW
    Participant

    Jana, I’ve been practising mindfulness for nearly 9 years now.
    It hasn’t helped yet!
    And I learned from a 6 week long course which a DOCTOR who soecializes in my condition put me on – not a book, or a You Tube video; and I have read extensively on it over many years, so I know what I’m doing!
    As for going deeper into my problems, you have no idea!
    I’m not going to give any personal information away, but this is something I’ve had to live with for 36 years!
    I also notice you didn’t say you’ve overcome such a problem yourself, even though I said clearly that those are the only people I wish to speak to about this. And that – as I also said – comes from much experience of the futility of speaking to people who haven’t went through these things themselves.
    I suspect instead that you’re just another well-meaning person who thinks they understand such matters better than they do, and thinks they understand me when they clearly do not.
    Also, who is the “we” you refer to?
    You shouldn’t presume to speak for anyone else.
    Sorry Jana, but no – I don’t wish to discuss this with you any further.
    And that’s partly because – as I predicted – such encounters only add further frustration to the problems I’m already dealing with.

    #443193
    DREW
    Participant

    Hi Alessa, thanks for your reply.
    I didn’t say that pill caused the thinking aloud problem, just that it started while I was on it. But I DO believe it did. It’s not a known side-effect, and the specialist who treated me for that condition said he hadn’t heard of such a thing, but didn’t say it couldn’t happen. My otherwise great GP didn’t want to know – I think he may have been afraid I’d try to sue the company and call him as a witness.
    Either way, no matter what caused the problem, I want to be rid of it.
    Chewing gum doesn’t help.
    I am glad it’s not an issue for you, but I find it often involves me thinking of serious personal issues, and about arguing with people about private matters, so it is a great concern to me.
    And yes, it happens often.
    Humming a tune may help – if I remember to do it! 😀
    I didn’t handle the optician thing well, as it was a reaction rather than a considered response. It was just lucky for me it was a positive one. Also, she wasn’t so much trying to help, as being impatient and taking control in an aggressive way.
    But that’s only one of countless examples over my life where people treat me like a doormat – something which would happen far less if instead of reacting, I was able to consciously choose how to respond. And I’d pick assertiveness over aggressiveness every time!
    The only answer I see to that one is training, but there’s currently no way I can facilitate that right now. I did attend an assertiveness course in 1999, but I wasn’t managing to socialize much then, so as to practise outside of class.
    I haven’t slept well since 2015, and my GPs couldn’t offer any help there, but it did start to improve a lot last year.
    I was put on beta-blockers for a benign tremor, but they didn’t help anything – including that.
    I wouldn’t try antidepressants – for one thing, you need a psychological problem to be given them here in the UK; but I’ve known people who take them, and none of them have gotten better as a result.
    Thinking of how to respond in a situation beforehand is a good idea, but I often find (several) unexpected things arise which derail you, and leave you feeling even more overawed. So I don’t believe in the Fake-it-till-You-Make-It / “As-If Principle” school of thought.
    Tried it and had it fail too many times, and seen too many others fail with it too.
    As for hitting things, just like me reacting to other people, it often happens before I know it, so there’s no chance to disengage.
    But I agree it IS a good idea to be aware of my moods!
    And I’ll look into the L-theanine too.
    Thanks, Alessa.

    #443194
    Jana 🪷
    Participant

    I understand your anger. I will not bother you anymore. Good luck, Drew! 🙏 😊

    ☀️ 🪷

    #443195
    Alessa
    Participant

    Hi Drew

    I wanted to add that my conditions are C-PTSD, Autism and Dyspraxia. Different people with different conditions are going to have different struggles.

    But Jana is correct in that it won’t be fixed overnight. There is no one fix, but over time and with practice everything adds up bit by bit. It took me years to get a better handle on things and I am only able to manage with medication when things are really stressful. When things are less stressful I can manage without.

    I did find meditation helpful, but only in very limited circumstances. For example, it is a good technique for self-care. It didn’t stop things on its own. I don’t think anything one thing would.

    It sounds like you’re doing your best to manage your condition. Please be gentle with yourself! These things are not your fault. Just keep trying your best and that is good enough, even if mistakes happen. ❤️

    #443196
    Alessa
    Participant

    Sorry, I didn’t see your reply until after I posted. I’m going to have to respond to it a bit later. Take care

    #443198
    anita
    Participant

    Dear DREW:

    “I continually find myself vocalizing my own thoughts (unintentionally), mostly noticing sometime through doing so, but also after I’ve finished saying them aloud!… Think of it: how often have you started scratching an itch BEFORE you’re aware that you’re doing so?”-

    – It’s possible that you could be experiencing vocal tics, which can be a symptom of Tourette Syndrome (from which I suffer) or other tic disorders. Vocal tics are involuntary sounds or words that a person makes, and they can range from simple sounds like grunting or throat clearing to more complex vocalizations, including speaking words or phrases.

    Many individuals with Tourette Syndrome report that their tics are preceded by uncomfortable sensations, often likened to an itch that needs to be scratched. From a UCLA study (escholarship.org): “Tourette syndrome (TS) and chronic tic disorder (CTD) are characterized by sudden, rapid, recurrent motor and/or vocal tics… In addition to these observable symptoms, many individuals with TS or CTD also experience frequent, uncomfortable sensory phenomena that immediately precede the tics… These sensory phenomena have been variously described as an itch, pressure, tension, urge, or ache that is temporarily relieved by the completion of the tic.”

    “A few years ago I was temporarily prescribed a medicine by a specialist, and while on it a problem began which persists even now”- tic disorders, including Tourette Syndrome, can sometimes be triggered or exacerbated by certain medications. This phenomenon is known as “medication-induced tics.”

    Medications such as methylphenidate (Ritalin) and dextroamphetamine (Adderall), commonly used to treat ADHD, have been reported to cause or worsen tics in some individuals. Certain antipsychotic medications, such as haloperidol (Haldol) and risperidone (Risperdal), can also lead to the development of tics as a side effect. Other medications, including some antidepressants and antiseizure medications, have been associated with the onset of tics in some cases.

    There are several other potential explanations for your experience of unintentionally vocalizing your thoughts, aside from tics, or in combination with tics. Here are a few possibilities: (1) High levels of anxiety and stress can sometimes lead to involuntary vocalizations. This can be a way for the mind to release tension or cope with overwhelming emotions, (2) Obsessive-Compulsive Disorder (OCD) can involve intrusive thoughts and compulsions, which might include vocalizing thoughts out loud, (3) Attention Deficit Hyperactivity Disorder (ADHD): Individuals with ADHD may have difficulty with impulse control, which can lead to speaking thoughts out loud without realizing it. This can be part of the impulsivity associated with ADHD, (4) Medication side effects as mentioned above.

    If in your evaluation, Drew, any of the above is a possibility, it might be helpful for you to seek an evaluation by a neurologist who can conduct a thorough evaluation and provide an accurate diagnosis and potential treatment options.

    Personally, I have suffered since childhood from high levels of anxiety and stress, ADHD symptoms, and I was eventually diagnosed with Tourette Syndrome (TS) and Obsessive Compulsive Disorder (OCD). SELF CONTROL (in capital letters) has been indeed a core problem for me: I couldn’t control the motor and vocal tics, couldn’t control the OCD compulsions, couldn’t react to people and situations the way I wanted to.

    “Have any of you managed this? If so, how? If not – PLEASE DON’T RESPOND!”- I did manage the OCD so well that I no longer fit the diagnosis, and my impulsivity problem had greatly improved! I am still working on reducing the frequency of the motor tics.

    “This one is lifelong: something will happen to me, and I can’t / don’t respond in the way I want to. E.g. a person will ask me something, say something to me, or DO something to me, and instead of responding in a way I’d like, I just react, often in a way I’d prefer not to. I’ll either have done it before I know it, or find myself in the process of doing it and feel it’s too late to stop. Either way, I always regret it… What I WANT to do in all such situations is be fully aware of what’s going on, be fully aware of what I’m doing, and RESPOND in a deliberate, controlled, assertive way; and ideally be calm too.”-

    – I can relate to this big-time as it’s been a lifelong problem for me until recently. I managed my impulsivity with what I call the NPARR method, which I’ve been practicing every day for years: first, I Notice stress within me, a disquiet. Next I Pause (before I act, before I say or do something that I may later regret). Next, I Address the situation. I ask myself: is there a situational problem that needs to be solved? What is the problem (define it)? Can I provide all of the required solution or pat of it? If I react mindlessly, automatically, will I be adding to the problem or creating a new problem? Etc. Next, I Respond, or not: I say or do something, or not. Finally, I Redirect my attention elsewhere. There is more to my method, and if you would like it, we can talk about it further.

    anita

    #443209
    DREW
    Participant

    Hi Alessa, thanks again for your reply.
    I appreciate what you’re saying, but I know it’s not my fault.
    It’s other people whom I sometimes find are not so forgiving, or patient, or tolerant.
    But I want to make one thing clear: I NEVER believed this is something that could be fixed quickly (or easily) – I don’t know where you or Janna got that idea from.
    I’ve had these problems for far too long, and seen many other people with all sorts of problems – some of which are similar to this (and never got better) to think that.
    Also meditation has always proved very problematic for me, for varying reasons.
    So while I know it helps some people, it hasn’t worked for me.
    That aside, thanks again for your support.
    🤙

    #443249
    DREW
    Participant

    Anita, thanks very much for your reply.
    I’m sorry I took so long to respond, I’ve just had a lot on.
    I think you may be on to something: I dismissed Tourettes outright as I believed it’s always congenital, but if you’re right that it can be brought on throughout life, and even triggered by some medicines, then that fits with my suspicion that my involuntary vocalizations may have been caused by the pill I was taking when mine started.
    I don’t know about other tic disorders though – I’d need to research that.
    I also don’t recognize the medicines you list, but perhaps mine is a culprit.
    It’s not likely to be anxiety, as that doesn’t fit with my situation then or now; and it can’t be OCD, as OCD sufferer’s carry out their compulsions knowingly and willingly, whereas my vocalizing my tboughts is purely involuntary. I also know three people with OCD, and one of my best friends is a CBT therapist on the NHS, so I’ve learned a bit about phobias, OCD, etc. from him.
    I have wondered about ADHD but only regarding impulse control: I’d never heard of it linked to vocalizing thoughts.
    But I thought that unlikely as I generally don’t have trouble concentrating; certainly not to the extent that I’ve heard described as typical for ADHD.
    My only problem now is getting access to a specialist such as a neurologist. I finished working a few years ago with the specialist who treated me for the chronic condition for which I was prescribed that pill.
    And my GP didn’t want to know when I suggested that I thought that pill could be causing this.
    And I can’t afford private treatment, but even if I could, I still couldn’t access it without a GP’s referral.
    So it’s going to be tough.
    But I’ll pursue these avenues you’ve suggested anyway, as these problems are far too serious to let go.
    So thanks very much for your help!
    🤙

    #443250
    anita
    Participant

    Dear Drew: You are welcome and no worries about when you respond. I want to thoroughly read and reply to you Wed morning (it’s Tues afternoon here).

    anita

    #443268
    anita
    Participant

    Dear Drew (or do you prefer DREW?):

    Thank you for your thoughtful response and for sharing more about your situation. I understand that finding the right diagnosis and treatment can be challenging, especially with the added difficulty of accessing specialists and not being able to afford private treatment.

    “I dismissed Tourette’s outright as I believed it’s always congenital, but if you’re right that it can be brought on throughout life, and even triggered by some medicines, then that fits with my suspicion that my involuntary vocalizations may have been caused by the pill I was taking when mine started.”

    Tourette Syndrome (TS) is generally considered congenital, meaning it is present from birth and often manifests in early childhood, with the average onset occurring between the ages of 5 and 7 years old. It is strongly influenced by genetic factors, and it often runs in families.

    While rare, there are documented cases of TS developing in adulthood. These cases may be triggered by factors such as stress, neurological injuries, infections, or certain medications.

    “I don’t know about other tic disorders though – I’d need to research that.”

    Tic disorders that include involuntary vocalizations, such as voicing thoughts out loud, include the following:

    Tourette Syndrome (TS): Multiple motor tics and at least one vocal tic present for more than one year.

    Persistent (Chronic) Motor or Vocal Tic Disorder: Either motor tics or vocal tics (but not both) present for more than one year.

    Provisional Tic Disorder: Motor and/or vocal tics present for at least four weeks but less than one year.

    Other Specified Tic Disorder: Tics that do not meet the criteria for the above disorders but still cause significant distress or impairment. The duration and presentation can vary.

    Unspecified Tic Disorder: Tics present, but there is not enough information to make a more specific diagnosis. The duration varies.

    Medication-induced tics are not classified as a separate tic disorder. Instead, they are considered a type of movement disorder caused by the side effects of certain medications. These tics can resemble those seen in tic disorders but are specifically triggered by medication use.

    “I also don’t recognize the medicines you list, but perhaps mine is a culprit.”

    The medications I mentioned, which can lead to the development of tics as a side effect, have different brand names. Here are some examples:

    Methylphenidate: Ritalin, Concerta, Equasym XL, Medikinet, and Delmosart.

    Dextroamphetamine: Dexedrine, Amfexa.

    Haloperidol: Haldol, Serenace.

    Risperidone: Risperdal, Consta.

    There are several other medications that can result in tics or tic-like symptoms. These include medications that treat psychiatric symptoms, nausea and other gastroenterological issues (examples: Metoclopramide, promethazine, prochlorperazine, levosulpiride), allergies (examples: Hydroxyzine, promethazine), and antiepileptics.

    “I have wondered about ADHD but only regarding impulse control: I’d never heard of it linked to vocalizing thoughts. But I thought that unlikely as I generally don’t have trouble concentrating; certainly not to the extent that I’ve heard described as typical for ADHD.”

    It is possible to be diagnosed with ADHD even if not all of the symptoms apply. ADHD is a spectrum disorder, and different individuals present different combinations of symptoms with differing severity, often without all the listed symptoms being present.

    If there’s anything more I can do to support you or if you have any further questions, please don’t hesitate to reach out. Wishing you all the best. Take care and stay strong 💪!

    anita

    #443270
    Alessa
    Participant

    Hi Drew

    Sorry for the delay! It has been really busy.

    I’m glad to hear you don’t beat yourself up over your condition. It is a shame that other people are not understanding or forgiving though. It’s unfortunate that people treat you so badly because of your condition.

    Oh I wasn’t trying to imply anything about you. I was just trying to be fair and supportive of both you and Jana. She is a good person and I don’t think she means you any harm. Infact, I guarantee that! ❤️

    I get it. Meditation is not always for everyone. It took me a long time to be able to do it because of trauma (I had trouble with all of the breathing focused stuff) and I also had difficulty with racing thoughts. It was like trying to meditate in a hurricane while having an anxiety attack. I had to get advice from a meditation teacher to navigate these issues.

    It is a shame that the doctors haven’t been able to help you with these issues so far. Hmm I wonder if it might be helpful to get a local free advocacy service involved with the doctors. I agree that it is important to keep trying. This is quite a significant issue. That such personal things are coming out and that it is so frequent is very troubling.

    Apologies, I wasn’t there so I can’t really interpret the situation properly. I’m sorry to hear that the optician was being so disrespectful.

    It’s good that your sleep has started to improve. 😊

    I do think that your idea about assertiveness training was a good one. If you google “skills you need assertiveness” the top link is the one I used to learn about assertive communication skills myself. I found it really helpful.

    I can understand the difficulties with scenarios which are planned for. I have made mistakes too when something unexpected comes up. I think that is why I only do this with very structured situations. For example, job interviews, repetitive situations at work and telephone calls. I work quite hard to practice beforehand. Studying, writing, memorising, practicing the scenarios with others before the real situation.

    Technically, all beta blockers do is calm down physical sensations of anxiety. Without actually altering the mind. It makes sense that they didn’t work based on what you’ve said. This isn’t an anxiety issue.

    I wish you good luck with everything! ❤️

    #443280
    anita
    Participant

    Dear Drew:

    After submitting my last post to you, I realized that I focused primarily on the unintentional vocalization of your thoughts and neglected the second part of your post. Based on what you shared about your lifelong struggle with controlling your responses, there are potential conditions that might be relevant. While only a qualified healthcare professional can provide a definitive diagnosis, here are some conditions you might consider:

    Impulse Control Disorders (ICDs): These are mental health conditions characterized by difficulties in controlling impulses and behaviors that can cause harm to oneself or others. These disorders often involve actions that are aggressive, destructive, or socially inappropriate. Here are two types that might be relevant:

    Intermittent Explosive Disorder (IED): This involves sudden episodes of unwarranted anger and aggression. Individuals with IED may have outbursts that are disproportionate to the situation.

    Oppositional Defiant Disorder (ODD): Although more common in children, ODD can persist into adulthood. It involves a pattern of uncooperative, defiant, and hostile behavior toward authority figures.

    Your thread title, “SELF CONTROL,” aligns with the challenges posed by impulse control disorders. You mentioned reacting impulsively to situations in ways you regret, which fits well with characteristics of these disorders. Your desire to respond in a controlled and deliberate manner indicates self-awareness and a wish for better impulse control.

    Towards the end of your post, you wrote:

    “What I WANT to do in all such situations is be fully aware of what’s going on, be fully aware of what I’m doing, and RESPOND in a deliberate, controlled, assertive way; and ideally be calm too. Have any of you managed this? If so, how? If not – PLEASE DON’T RESPOND!”-

    Your use of uppercase letters and strong language indicates intense emotional responses, which align with IED. People with IED often experience sudden outbursts of anger and frustration. Your frustration with not being able to control your responses reflects a key aspect of IED, where individuals wish for better control over their impulses and reactions.

    Your emphatic instruction to not receive unsolicited advice (“PLEASE DON’T RESPOND!”) and your frustration with well-meaning people fit the defiant and oppositional behavior seen in ODD.

    While your posts exhibit behaviors and feelings that may align with these disorders, it’s essential to remember that a comprehensive evaluation by a mental health professional is necessary for an accurate diagnosis. Your unique symptoms and experiences need to be assessed in the context of your overall mental health and history.

    Cognitive-Behavioral Therapy (CBT) is a recommended treatment for impulse control disorders. It starts with a comprehensive assessment to understand your specific symptoms, triggers, and the situations in which you struggle the most. Together, you and your therapist would set clear, achievable goals for therapy, which might include learning to control your vocalizations and managing your impulsive reactions.

    CBT involves cognitive restructuring, which helps identify and challenge negative or irrational thoughts contributing to impulsive behaviors. For example, if you think, “I can’t control myself,” a therapist would help you reframe this thought to something more positive and empowering, like “I can learn strategies to manage my impulses.”

    Skills training is also a key component of CBT, where you can learn specific skills to help control your impulses and vocalizations. This includes developing strategies to handle difficult situations more effectively, allowing you to respond rather than react.

    I suffered from impulse control issues myself and had CBT therapy for two years (2011-13), achieving great success with impulse control, and will gladly share more about it with you, if you are interested.

    You’re not alone in this journey, Drew, and I believe in your strength to overcome these challenges.

    anita

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