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anitaParticipantDear Tommy:
This will be a long post, but before anything else, I want you to know that there is no criticism here—only appreciation for you. I think well of you—no lingering anger or resentment, just genuine care and positive regard.
“If all the research was right then my mother should not have (dementia) nor any of her siblings. Yeah, age may be the major factor, but it isn’t the only one… My grandfather on my father’s side was balding in his forties. My father also. I too have that genetic trait. So, I can see what gets passed on.”-
Balding in men is highly hereditary. Dementia, on the other hand, is largely not hereditary. While balding has a strong genetic component, dementia is mostly shaped by non-genetic factors like diet, exercise, and brain activity—which means your future is still yours to shape.
“I dismissed my grandmother when she asked for the way home. It did not occur to me that she was having an episode. I was young and having fun with friends. She was lost for half the day. My mother spent that day looking for her. The guilt was overwhelming.” (June 2, 2025)-
I remembered that story and thought you had shared about it recently, so I started going through your posts back in time. To my surprise, it was long ago that you first shared it (and I still remembered!). It was on January 9, 2022:
“When I was about 13 years old, I saw my grandmother in the park near our apartment. She was asking which was the way home. I was busy with my friends and pointed in the general direction. Later, I got home to see my mother go out looking for my grandmother. My grandmother was lost. She had an episode of dementia and lost her memory of where we lived. I felt terrible for not having taken her home. We did eventually find her. Years later, she passed away. Now recently, my mom passed away. When I saw her in the hospital, she also developed dementia and did not recognize me. I remembered what happened years ago. And this is what I have to look forward to, losing my memory.”-
Comparing the two accounts, Tommy, it seems that you have reframed this memory over time, shaping it into a narrative of self-blame and dismissal—”I dismissed my grandmother.”
The phrase “dismissed” suggests a harsh, deliberate neglect, when in reality, your actions at 13 were simply those of a young boy caught between his carefree world and an unfolding situation he, at 13, couldn’t (and shouldn’t be expected to) fully understand.
In the original telling, you pointed her in the general direction—an act that, at face value, was not cruel or dismissive. You were a young teenager, unaware of her dementia episode, and assumed she could find her way home. Yet, over the years, your guilt has intensified, reshaping this memory into the belief that you actively dismissed her.
This shift signals a deep emotional burden, where perhaps you retroactively assigned blame to yourself as a way to make sense of your lingering regret. It’s as if your younger self’s innocence and the moment’s fleeting nature became swallowed by the enormity of what followed—her dementia, then her death, then your mother’s passing, your sister’s, and others.
I think this incident, at 13, may have marked the moment your carefree mindset fractured. At 13, children often still exist in a bubble of youthful fearlessness, where worries are few and the world feels wide open. But this singular event introduced you to a stark reality—your actions (or inactions) could have consequences you weren’t prepared for.
The memory of this day seems to have lodged itself in your psyche, not just as an isolated regret but as a turning point that led to self-doubt, fear of making mistakes, and an unbearable weight of responsibility.
It seems like your fear of dementia is tied to the losses you’ve experienced, as though fate must follow the same path. But those losses were never your fault, and your future is still yours to shape.
“I am not a good person.” (July 11, 2024) “But, I do try to be civil (not evil). Don’t always succeed. But try.” (July 4, 2024)-
But you are a good person, Tommy. And at 13, you were a good boy! That 13-year-old boy, pointing toward home, was not an evil boy—he was just a child being a child.
“I am sorry that I have no sympathy for you. You are suffering due to your own actions and your own choices. Looks like I have lost my compassion. I can not give you a kind word.” (June 18, 2024, from your reply to a member)-
I see you projecting your inner feelings onto others. It’s as if you were talking to yourself: “I have no sympathy for you, Tommy. You are suffering due to your own actions and your own choices. I cannot give you a kind word, Tommy.”
But you deserve sympathy. You deserve kindness—especially from yourself.
“You want freedom from this obstruction? You find forgiveness. Yes, forgive. Forgive them and yourself. This doesn’t mean to just let it go. You have to find the ability in yourself to forgive. Then, pain, anger, thoughts, memories will lessen. Moving forward will happen.” (January 18, 2024, advice you offered another member)-
Just the right advice for yourself, Tommy. Forgive the 13-year-old who was playing carefree as children should. He didn’t mean anything bad—he was just a boy being a boy. And since then, you didn’t make bad things happen. You had no part in causing the illnesses and deaths of the people closest to you. It wasn’t your fault.
“The only judgment that counts is yours. Family can say whatever they want. It is your happiness that matters most.” (February 28, 2022, another piece of advice you offered another member)-
The only judgment that counts, Tommy, is your own. Your peace of mind matters most. And you deserve peace. You deserve to finally label yourself: Not Guilty.
“When younger, I used to read the Reader’s Digest. In it was a section called, ‘Laughter: The Best Medicine.’ Of all the animals on this earth, there is only one that can laugh. Humans. There is no real rhyme or reason for it. But, it does make one happy. I like to be happy.” (June 23, 2022)-
You deserve to be happy, Tommy. You do not deserve to carry guilt that was never yours to carry.
“When I was younger, I liked to fix things. If a lamp stopped working then I would try to fix it. It made sense of the world. So, I learned to fix plumbing, electrical work, and cars. I have fixed a few TVs and one video cassette player… Simple stuff. I don’t know what it will be like to live without being able to help fix things.” (June 1, 2025)-
Maybe the part of you that took on guilt long ago is waiting to be released. What if, like fixing a lamp, you could gently repair the way you see yourself?
Anita
anitaParticipantDear Tommy: I am not focused at this time, but I want to re-read your post of only a few minutes ago and respond in the morning (it’s 9:26 pm here). I wish I could help in some way, make up for making you feel bad before, something I do regret 😔
anita
anitaParticipantPassed Yesterday, colliding into Today-
No time to gently merge.
Time is running out.
Time doesn’t wait.
Anita of first decade of life, of second, of .. oh, aging has begun back then! Oopsie, am on the other side of life-death.
Time is independent of personal wishes, conveniences, preferences and individual processing of time.
It just rushes ahead.
So, now I am an older woman? I don’t remember giving my permission ..lol. Not really laughing out loud.
Anita
anitaParticipantDear Tommy:
You wrote, “My grandmother on my mother’s side and my mother had it later in her life (mid-seventies). I saw it and know there isn’t much that can be done. But I feel it is going to happen to me. I am nearing that age. My wife doesn’t believe it, so we don’t talk about it.”-
I understand why this weighs on you, and I wanted to look into some scientific research on dementia rather than leave it to belief alone. Here’s what I found:
Genetic Influence on Different Types of Dementia:
* Alzheimer’s Disease → More than 99% of cases are NOT inherited.
Early-onset Alzheimer’s, which occurs before age 60, has a stronger genetic link. However, since your grandmother and mother developed it in their mid-seventies, this was not early-onset Alzheimer’s.
* Vascular Dementia → In almost all cases, parents cannot pass it directly to their children. However, hereditary health issues like high blood pressure or diabetes may increase risk.
* Frontotemporal Dementia (FTD) → Has a higher genetic link than other types—about 40% of cases have a family history, meaning 60% are not hereditary.
* Rare Genetic Dementias → Some rare forms, like Familial Alzheimer’s disease (FAD), are directly inherited. However, FAD accounts for less than 5% of all Alzheimer’s cases and typically appears before age 65, often as early as the 30s or 40s—which does not match your family history.
Quotes from the Alzheimer’s Society (Source: Alzheimer’s. org. uk):
“The majority of dementia is not inherited by children and grandchildren. In rarer types of dementia, there may be a strong genetic link, but these are only a tiny proportion of overall cases.”
“In the vast majority of cases (more than 99 in 100), Alzheimer’s disease is not inherited.”
“The most important risk factor for Alzheimer’s disease is age. Because Alzheimer’s disease is so common in people in their late 70s and 80s, having a parent or grandparent with Alzheimer’s disease at this age does not change your risk compared to the rest of the population.”
This means, as I understand it, that having a grandmother and mother with dementia in their mid-70s, does not at all increase your own risk of getting dementia.
Key Strategies for Brain Health & Dementia Prevention:
* Stay Physically Active → Regular exercise supports cognitive function and lowers vascular risks (walking, swimming, cycling, strength training, balance exercises).
* Eat a Brain-Boosting Diet → Focus on a Mediterranean-style diet rich in leafy greens, berries, nuts, healthy fats (olive oil, avocado), and omega-3s (salmon, sardines) while limiting processed foods.
* Keep Your Brain Stimulated → Learning new skills, puzzles, reading, writing, and social engagement help form new neural connections.
* Get Quality Sleep → A consistent sleep schedule, limiting screen time before bed, and managing stress improve brain function.
* Manage Stress & Mental Health → Meditation, breathing exercises, journaling, therapy, and positive social interactions help regulate inflammation and memory.
* Monitor Health Conditions → High blood pressure, diabetes, and obesity increase dementia risk—regular checkups can help manage them early.
Connecting this to Alessa’s thread 🙏, developing self-compassion will help you, Tommy, not only emotionally, but mentally and physically, supporting long-term brain health and lowering further your risk of dementia.
Sending you support and encouragement 💛
Anita
anitaParticipantThank you, Alessa, I truly appreciate your support and encouragement! ❤️ 🙏
anitaParticipantPassed yesterday- Here it Is- TODAY.
There was an avoidance in facing the past, yet not facing the present.
So, now, Passed Yesterday, here I am in the present, real problems that I am now looking at.
And I am currently quite overwhelmed.
It’s a legal, financial complicated situation that may result in.. I don’t know..
Don’t know.
anita
anitaParticipantDear Tom:
Thanks for checking in—I hope you’re doing well too.
Congratulations on reaching that savings milestone! That’s a huge achievement, and I’m really glad it’s providing you with some peace of mind. Knowing you have that safety cushion can make navigating things a bit easier, even if you don’t need to act on it right away.
It’s great to hear you’ve reached out to the NHS about therapy. Taking that step is important, and I hope you hear back soon with helpful options. In the meantime, if you ever want to talk things through, I’m here.
Wishing you a smooth week ahead.
Anita
anitaParticipantIt’s finally getting darker outside at 9:15 pm, wouldn’t be dark before 10 pm.. Too close to the North Pole here.
Just a hint of darkness.
Still too much light at almost 9:30 pm.
Feels like 5 am, yet, it’s not yet 10 pm. No bird sounds. They will come alive on the other side of darkness, in about 6 hours. Something to look forward to.
anita
anitaParticipantThere is an overwhelming amount of mental illness in our world—it’s everywhere, both can be seen in real life and in these forums. So many people are suffering, countless lives weighed down by struggles that often go unseen. Can anyone truly refute or deny this reality?
It takes a lot to not give in and give up.. once again.
I’ve seen the suffering in my mother half a century ago, and I see it this very evening, in another person’s face right this moment.
And there’s nothing I can do about it.
I didn’t cause it- didn’t do it- can’t undo it.
Just.. So.. Much… Pain.
What would be the point in me crumbling.. once again, collapsing, helpless, underneath the pain around me..?
Somebody HAS TO BE STRONG in the midst of all this crazy suffering.
Why Not Me?
Who is reading these words of mine.. Peter? Alessa? Maybe, just maybe Jana (still on my mind)?
Jana is probably not reading this, yet, she is still on my mind.
I miss Jana. I wish she’d be back. I wish she knew that.. well, I wish she knew that she got through to me.
I don’t want more of her criticism. No, no more criticism!
It’s the other part I miss: her genuine, honest desire to CONNECT, and my regret that I wasn’t able.
* No need to pass on this message to Jana, Alessa. It’s just silly me, missing Jana.
anita
anitaParticipant❤️ ❤️ ❤️
anitaParticipantYou are welcome, Alessa. ❤️
anitaParticipantPassing Yesterday means offering as much kindness and understanding as I can to others—recognizing their pain, struggles, and humanity. At the same time, it also means standing firm in my own dignity, refusing to submit to disrespect, mistreatment, or manipulation from those who seek to undermine me.
Moving forward isn’t about choosing one over the other—it requires both. True healing comes from balancing empathy for others with the strength to protect myself, ensuring that my kindness is given freely but never at the expense of my own well-being.
Simply put, it is essential to me that I never submit to anyone’s disrespect.
Anita
anitaParticipantDear Alessa:
Thank you for trusting me with your thoughts and for asking me for advice. I feel truly honored. ❤️
As I read your words, I see a central thread running through your life—the roles of Survivor and Caregiver. From an unimaginably cruel childhood, you found ways to endure. You took on the role of protector for your brother, doing everything you could to shield him, feed him, and keep him safe in a world that made that nearly impossible.
Even now, as an adult, that instinct to care remains strong—it’s woven into who you are. You continue to give to others, finding meaning in nurturing, whether through motherhood or supporting those around you, including people in these forums.
You lived in constant fear, yet you kept going—not just for yourself, but for your brother. In many ways, caring for him became the reason you didn’t give up entirely. That role was powerful, but it also carried a heavy burden—because when survival depends on protecting someone else, it can be devastating when that protection isn’t enough.
The guilt you carry isn’t because you failed—it’s because no child should have been placed in that position to begin with. You did everything in your power, but the circumstances were beyond your control.
Now, you ask about a sense of self—because for so long, your existence has been tied to surviving and caring for others. It’s completely understandable that looking inward, beyond those roles, feels unfamiliar. Who are you outside of survival? Outside of caregiving? This isn’t a question that needs an immediate answer—just gentle exploration.
A place to start could be small moments of self-reflection:
What makes you feel at peace, even briefly?
When are you happiest?
What do you enjoy purely for yourself, without an obligation to help someone else?
If survival and caregiving weren’t the defining themes, what would you want your life to be about?
Self-care doesn’t have to be grand gestures—it can be as simple as taking time each day to focus on what you need, separate from anyone else. Even allowing yourself to consider these questions is an act of reclaiming yourself.
You are more than what was done to you. More than the roles you’ve taken on out of necessity.
You have already survived the impossible—with incredible strength. Now, you deserve the space to exist for yourself, not just for others.
I’m grateful that you shared this with me, and I’m here whenever you want to continue exploring this journey.
Warmly, Anita
anitaParticipantDear Tommy:
I feel for you—looking back on past mistakes can be incredibly painful. Please know that I genuinely appreciate your self-awareness and the effort you’re making to grow from past experiences.
Regarding the guilt-trip feeling, I want to clarify that when I pointed out the harshness in some of your past responses to members, it wasn’t meant to hurt you or make you feel bad. My intention was to protect other members and to encourage reflection on how our words impact others, especially those who are struggling. I understand this firsthand, as I’ve also submitted responses in the past that I now regret.
It was about recognizing that certain approaches—particularly ones that feel harsh or judgmental—can intentionally, or unintentionally cause harm.
One thing I want to gently share—sometimes, when we feel stuck in ourselves, unable to move forward, we unknowingly project that frustration onto others. The anger you’ve felt toward people who seem unable to ‘move on’ might actually reflect an inner struggle—an anger toward yourself for feeling similarly trapped.
This could also be why receiving affection felt unfamiliar or uncomfortable. When we struggle with self-acceptance, warmth from others can feel unsettling, even when it’s offered with kindness. This isn’t a criticism, just something to reflect on as you continue your journey.
For decades, I carried a deep sense of shame, guilt, and anger toward myself. I struggled with self-acceptance, often judging myself harshly and, at times, projecting that onto others. My healing has been about learning self-acceptance and forgiveness, both for myself and for others. While I’ve made progress, it’s still a journey, and I continue to grow.
Of course, I’m not saying your experience is the same as mine. We all process things differently, and only you know what truly resonates with you. I just wanted to share what I’ve learned in my own healing journey, in case any part of it is helpful.
I truly appreciate the depth of your reflection and the work you’re doing, Tommy. Growth takes time, and self-reflection isn’t always easy. I simply hope to encourage compassionate dialogue, so that healing—both for yourself and for others—can continue.
Warmly, anita
anitaParticipantI will be back to you in the morning, precious Alessa!
anita
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Though I run this site, it is not mine. It's ours. It's not about me. It's about us. Your stories and your wisdom are just as meaningful as mine.